Family Walking On the Beach

BIG PICTURE:  Strategies and Goals for Now and Future

Finding out that your child has a rare disease is devastating, but we need to stay focused on what we can do now and what's ahead of us.

Although SKS presents a variety of tough symptoms to cure, there are things we can do now and in the future.  Here is a big picture I see.

Artistic Clapboard
 1. What can we start now to manage symptoms.
Homeopathic Medicine
2. Try repurposing old and new medicines.
3. Gene Editing in the Future
Pipetting Samples and Test Tube
4. Beyond Gene Editing